So two weeks ago was the first time I saw my neurologist since I had had Noah, he had popped in during my appointments with my epilepsy nurse but this was my first appointment with him directly. I had a huge list of stuff I needed to talk to him about, mainly keppra, which was destroying me and my relationships with people closest to me.
I have been gritting my teeth of late as I have watched sales rep after sales rep claim that Juice Plus can help medical conditions, gain world peace, solve world hunger and stop natural disasters (ok the last few bits may be an exaggeration on my part but that’s what it feels like). I have watched time and time again as these Reps with no (or very little) medical knowledge claim this product is safe for those with epilepsy, that it can or is proven to help or decrease your seizures, safe for those who are pregnant and can help a number of other medical conditions. REALLY????
I don’t even really know where to start with this blog post because I have so much I want to include but at the same time I haven’t had enough about me to put pen to paper. I did intend to cover my latest neurology appointment but as I have written this the before bit has ended way longer than I intended. I’ve realised that I haven’t given a general overview of our life recently and life has been a rollercoaster of late so I will do my best to cover it all.
I found out in October 2014 I was expecting my first child, what followed was a rollercoaster of a pregnancy, mainly because I suffered from hyperemesis gravidarum and also because I happen to have epilepsy. I have composed a list of 5 things pregnant women with epilepsy want you to know…
This post is part of the Epilepsy Blog Relay™ which will run from June 1 through June 30. Follow along and add comments to posts that inspire you!
My topic this time around has been stigma, I had a long hard think about an area that epilepsy still needs more awareness and then I came up with this… Epilepsy & Employment.
I could talk about this issue for hours, I have been fortunate that I have had some brilliant managers who are very understanding but I have also been the other side of the fence and seen how badly epilepsy in the workplace can be handled. For those of who follow me on Facebook you will know I recently made the choice to return to work having left my last employer following having Noah. It was a huge step for me to regain some independence and confidence, I am fortunate that my manager is very understanding and I was also very honest about my life as it is now and so far that seems to have paid off and everything is going brilliantly. But like I say I haven’t always been that fortunate, so I asked others for their experiences and this is what I have come back with…
As I have said before our little boy is so loved and cared for, so I decided to celebrate Noahs 1st birthday a bit more and mark it with a post of birthday wishes and photos from Chris and some of those closest to Noah…
What can I say you’re one already, I think I blinked and this year has disappeared. That said it has been the best year of my life because I met you and I get to be your Mummy. Every day you surprise me and every day you make me so proud I could burst, the thing no one was able to explain to me before you came along was just how much I would and could love you, how every time you cried it would physically pain me (even if it is my fault because I won’t let you play with Patchs water or eat his food!) Nobody told me that you would become my favourite person to be with and that I would miss you desperately anytime you aren’t with me.
It was that time again, routine appointment with my epilepsy nurse, for some reason I was so unbelievably nervous about it, I don’t know why because as far as I was concerned nothing was really going to change.
BLOG POST 50!!!!!!!!!!!!!!
My 50th blog post!!! I actually cannot believe I am writing that, how am I at 50 already? I obviously talk too much! I was wracking my brains this morning for a topic to cover to mark this event and someone suggested this: How has the blog helped me? So today that is what I will tell you all.
On Wednesday 18th May 2016 the Young Epilepsy team took over The UnderGlobe, London for a glittering evening of laughter, celebration and inspiration. For the second year running myself and Chris were invited, myself as a blogger and Chris as he had been shortlisted for the ‘My Champion’ Award. As ever what a night it was, if anyone knows how to do awards ceremonies its Young Epilepsy! The Young Epilepsy Champions Awards is now in its fourth year and it brought with it some changes. The awards which had previously been held on Purple Day had now been moved to Epilepsy Awareness week, and there was also a new venue for 2016. News Presenter Nicholas Owen hosted the ceremony, other celebrities included Gogglebox’s Steph and Dom Parker, Actress Kerry Howard, Miss United Kingdom Mhairi Fergusson, S Club Junior’s star Stacey McClean and Actor Nathaniel Parker.
My names Faye,, tea addict and keen runner. I'm 30, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.