When I started thinking about this blog I knew I was going to be opening a can of worms. How do you talk about epilepsy? It can be a very emotive topic and I have seen many arguments break out over the years in forums and support groups because of terminology and phrases used. So I decided to do a bit of research for myself.
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Living with Epilepsy
This post is just going to be a general overview of what it is like to live with uncontrolled epilepsy, and to try and give you some insight into what it is like for those around me. I know people have it worse than me, then some have it better than me, this is just a snapshot of our life. The two weeks that have followed the TC have been two of the hardest of my life, because of the epilepsy, pregnancy sickness and because of things that have happened to my family. In this blog I have always tried to find the balance between being honest and respecting people’s privacy, and in the interest of their privacy I won’t go into detail, but it has been an incredibly hard time for everybody. There have been a few positives such as the meeting I was asked to attend as Patient Representative (blog post to follow shortly) and also being asked to cover the Young Epilepsy Awards as a writer, and I am clinging to these in my weaker moments. So here we are 20 weeks in, can you believe its half way, and it is time to see the Neurologist again. Honestly I am starting to see this man more than I see some of my own family and friends! Chris is working so I have asked my Mother in Law along so she could see the baby when they scan.
Where we are now I have gone back to the old school method of keeping a diary of any seizure activity. I have done this because when it came to the last appointment I missed things out or forgot things, and with there being a lot of activity Im struggling to remember things and am getting confused. I also have been writing down questions as things crop up. |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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