When I started thinking about this blog I knew I was going to be opening a can of worms. How do you talk about epilepsy? It can be a very emotive topic and I have seen many arguments break out over the years in forums and support groups because of terminology and phrases used. So I decided to do a bit of research for myself.
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#Epilepsydebate15
This post was going to cover my 20 week scan and foetal echo, but due to a rotten run again with the sickness and subsequently epilepsy (part of which resulted in burns to my hands) I hadn’t got round to putting it together. Instead today I managed to sit through the #epilepsydebate15 in the House of Commons. I tried to keep up and take notes so I could put this forward, and I’m hoping I hit the key points, but due to how rough I feel I apologise if I miss something! Also some of what I have written has been lifted from the debate itself. I have to thank Chris and sky + for their help here, Chris in repeating things for me and sky for allowing me to pause and rewind! Harsh truth
I thought long and hard about writing this post. Namely because I was concerned about peoples reactions as its brutally honest and blunt, I make no apologies for this. This isn't to shame anyone but to highlight some comments made which show the lack of understanding of both epilepsy and epilepsy in pregnancy. Shockingly sometimes the worst comments have come from those closest to those with epilepsy. Did you really just say that? When I asked for peoples experiences I was shocked at how many people came forward and even more shocked at some of the comments. Out of respect for those who have told me of their experiences I have made all posts anonymous: |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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