I wasn’t going to bother writing this post as Chris had covered part of the appointment and had covered it so well, but I’ve decided to as I almost see the blog as a diary and I want to be consistent and make sure I cover everything.
Monday 8th January saw my first appointment with my consultant in what felt like forever. I had a lot of questions for him, we had been talking about having a second baby but it was still something so far from being a reality but I felt we needed to address it. Also at the point of the appointment I had been 13 weeks completely seizure free, I was bouncing off the walls and ideally wanted to decrease my meds back to what I was taking before Noah.
I started by telling him how well I had been feeling and he knocked the wind of out my sails ‘ the meds aren’t working Faye, this is a lucky streak, I am confident the seizures will return.’ OH. That was not what I was expecting and I remember thinking oh what does he know (I apologise in advance, as he was totally right!) We had a lengthy discussion about better control of seizures from the point of view of my health rather than minimising any pregnancy risk. It was decided, in both respects, continuing on a high dose of lamotrigine was not in my best interests and anyway given I had significant loss of control of seizures whilst pregnant it was unlikely to give me good control, and it is giving me poor control at present anyway.
We had a discussion about which new medication to introduce, purely based on what would be best for me, it was decided to introduce Pregabalin which has the added bonus of being used to treat anxiety. It was decided to introduce it slowly over a 16 week period and luckily for me he agreed not to do anything with lamotrigine until after my two marathons and 100KM trek. The last thing I wanted was to start being really ill before them and it mess my training up. The running was making me really feel like me again and I am clinging onto that.
However two weeks later I had seizure whilst home alone with Noah, I am just thankful that we have such amazing friends who will drop everything to come to mine and Noahs aid. I should of known it was coming I had been feeling a bit funny for a few days, but guess I just got complacent, which is never a good move.
I have been on my new med now for almost 8 weeks, with fortnightly increases, and it *seems* to be going well. I have had a few side effects, headaches and exhaustion - I’m back to napping most days, which isn't great when Noah has dropped his nap!
On the whole life is good and I know I am very fortunate. The blip I had seems to have calmed down and business as usual has resumed.
Facebook page: https://www.facebook.com/fairyfaye1986/?ref=aymt_homepage_panel
Facebook support group: https://www.facebook.com/groups/739520702798749/
My names Faye, mostly known for being a tea addict and keen runner and swimmer. I'm 32, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.