So here we are 20 weeks in, can you believe its half way, and it is time to see the Neurologist again. Honestly I am starting to see this man more than I see some of my own family and friends! Chris is working so I have asked my Mother in Law along so she could see the baby when they scan.
Where we are now I have gone back to the old school method of keeping a diary of any seizure activity. I have done this because when it came to the last appointment I missed things out or forgot things, and with there being a lot of activity Im struggling to remember things and am getting confused. I also have been writing down questions as things crop up.
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Before
I've felt so awful in the run up to this appointment that its only today, the day of the appointment, that I have thought to sit down and write a list of questions. At the last appointment we discussed adding another med if things were no better. I am really apprehensive with this as I know being on more than one AED isn’t great and lamotrigine alone in pregnancy is one of the safest. However he did reassure me at the last appointment that after the first trimester the risks when introducing another med were minimal. Options My options would be either Keppra or Clobazam; I have previous experience of both. Clobazam was used as a rescue med for me back in 2011 when I couldn’t break a cycle of seizures. It worked, however it made me very very tired.. Keppra I have only ever tried on its own and it was of no use to me at all but Ive heard it works very well along side lamotrigine. Waiting game
As I mentioned in my previous blog, epilepsy in pregnancy does matter, and so this is a much awaited appointment. I had mixed feelings about it. Firstly I felt defeated, worn down by the epilepsy and the break through in my seizures,it had been almost two years since I last had to see my neurologist.Mostly I was anxious for it to be here, I knew I would get some much needed answers. It was also my chance to take my husband along for him to ask any questions or to just put his mind at rest. So does this – my epilepsy - matter?
Ours wasn’t an unplanned pregnancy, but thanks to my very good epilepsy nurse, I had started taking 5mg of folic acid since December 2013. My nurse has been amazing, but I was shocked at how little information and support there is available for mums-to-be with epilepsy. I had millions of questions – but nowhere to turn for answers. I don’t know one other mum or mum-to-be with epilepsy. I also found that my epilepsy did matter. No sooner had I done the test when the morning sickness started and my epilepsy got worse. My GP (who is amazing) has given me some anti-sickness tablets. This is to prevent sickness and help me to keep my meds down, pretty important in controlling epilepsy. |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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