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#Epilepsydebate15
This post was going to cover my 20 week scan and foetal echo, but due to a rotten run again with the sickness and subsequently epilepsy (part of which resulted in burns to my hands) I hadn’t got round to putting it together. Instead today I managed to sit through the #epilepsydebate15 in the House of Commons. I tried to keep up and take notes so I could put this forward, and I’m hoping I hit the key points, but due to how rough I feel I apologise if I miss something! Also some of what I have written has been lifted from the debate itself. I have to thank Chris and sky + for their help here, Chris in repeating things for me and sky for allowing me to pause and rewind!
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So here we are 20 weeks in, can you believe its half way, and it is time to see the Neurologist again. Honestly I am starting to see this man more than I see some of my own family and friends! Chris is working so I have asked my Mother in Law along so she could see the baby when they scan.
Where we are now I have gone back to the old school method of keeping a diary of any seizure activity. I have done this because when it came to the last appointment I missed things out or forgot things, and with there being a lot of activity Im struggling to remember things and am getting confused. I also have been writing down questions as things crop up.  In part two Chris covers from the 12 week appointment, through to the neurology appointment at 16 weeks. As well as the sickness and his own views on how the first 16 weeks have gone.
Sickness Faye was being sick a lot which wasn’t helping at all. Those who have been pregnant or have been around pregnant women know how awful “Morning sickness” can be. Now throw in the fact that being sick was affecting Faye’s drug levels. AED’s don’t tend to work when they’re in the toilet with this morning’s breakfast. To put it short Sickness + Epilepsy = heightened seizure activity. As for “Morning Sickness”? How about “Every-part-of-the-day Sickness”? That’s more like it. Faye is suffering morning, noon and night. Faye has ended up as a mixture between Bella when pregnant in the Twilight Saga (my man card has just been revoked…) and the girl from The Exorcist. Throw in a high level of absences and my wife is no longer herself. The absences are not nice, they happen randomly and from my point of view there’s no “tell” with them. I can be in a full blown conversation with Faye and she wouldn’t have heard a word. Or Faye can ask me something, I answer and then I get asked the same question seconds later. It’s not fun for either of us. Introduction.
I have asked Chris to write a two part entry covering up to week 16 of the pregnancy, there is too much to cram into one entry! I want people to see the perspective of a Dad-to-be and get an idea of the overall effect epilepsy has on our lives as a couple. The first entry is a quick introduction and covers up to the first Neurology appointment at ten weeks. In the beginning: Hello, I’m Chris (Faye’s husband) and she has asked me to contribute to her brilliant blog. So let’s start at the beginning. When Faye and I first started dating she was very open with the fact she had Epilepsy. I didn’t think it was that big of a deal, I was in a unique position that I had done quite a bit of First Aid training so I knew all about Epilepsy… well at least I thought I did. It soon became apparent that what I thought was epilepsy and what actually WAS epilepsy were two completely different things. But Faye was brilliant and explained fully what the differences between the different type of seizures and what she was affected by. As time went on I managed to get a grip on how epilepsy affected Faye and what I should and shouldn’t do to help her if she had any form of seizure. |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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