Monday 23rd October is SUDEP ACTION Day, SUDEP (Sudden Unexpected Death in Epilepsy) is a topic I have wanted to cover for a while, but equally it’s a topic I feel strongly about doing justice. So what better time to look at the topic than SUDEP ACTION day, because it is time we took action, a staggering 42% of Epilepsy deaths ARE preventable! NICE guidelines state that ALL doctors should discuss SUDEP with patients but sadly that is not the case, personally I had not heard of SUDEP until I came across the term in a support group in 2011, and my Neurologist never mentioned it until I was pregnant with Noah in 2015 at the age of 29! I have lived with epilepsy for 22 years by this point.
Inspirational is a word thats been thrown about quite a bit in relation to my Royal Parks Half marathon. I dont for one bit feel inspiration or strong or any of the other words levelled at me. So after a run that didnt go to plan I am putting pen to paper. Its time to look at what happens when epilepsy interupts life and what was actually going through my mind on Sunday.
My names Faye, mostly known for being a tea addict and keen runner and swimmer. I'm 32, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.