Again change of plans in what this blog entry is, it was meant to be from Chris but will now cover the events of the weekend.
With Chris working a night shift, and being told I wasn’t to take part in the swimathon that Saturday I thought it would be a perfect time to spend some time quality time with my family and my nephew before he went back to school after the Easter break and take advantage of the gorgeous weather we have been having. So I hired a beach hut, I had a really bad night’s sleep but woke up almost as excited as the four year old. I envisioned a day playing in the sand with the kids, sea air helping my sickness and putting colour back into my cheeks and just a nice day overall. It did not go like that.
So much has happened in the run up to this appointment that I have barely had time to think about it. Chris is on his best friends’ stag do – a much needed break, but it means he won’t be with me on the day.
We did sit down and have a chat shortly before he went away, he gave me his opinion of how he thinks things have been. He doesn’t think things are any better, and he is well aware of how tired the Keppra has been making me.
I also raised the point to Chris that I don’t think the last four weeks have been a fair judge of the introduction of Keppra, which he is in agreement with. I have been under a lot of stress and my sleep has been disturbed so both auras and absences have increased. However this always happened no matter how well controlled the epilepsy was if I am tired or stressed, so like I say Keppra hasn’t really been given a fair chance and I think my opinion would be to give it another month and hope things in life settle down on a personal front and therefore the epilepsy will also calm down. I have also been being sick quite a bit again so I haven’t really stood a chance. I am tired, really flipping tired. I have also been suffering with heartburn which has meant I have been up several times in the night, again not great!
One afternoon I was spending the day doing not very much and an email landed in my inbox from Epilepsy Action,
“The EMPIRE team at Queen Mary University of London have recently completed a Delphi survey, Defining core outcomes for clinical trials in pregnant women with epilepsy (E-core). As the next step, they are going to hold a consensus meeting between different stakeholders, to finalise the results before publishing them.
They would like to invite you to attend the meeting as a patient representative, to help them gain more insight from the survey results."
My names Faye, mostly known for being a tea addict and keen runner and swimmer. I'm 32, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.