I was nervous about this appointment, as I hadn’t phoned the team to tell them about my TC just after our last appointment. My reasoning being that I had only just had an appointment and was on an increase/introduction of the Keppra so what else could they do? Two TC’s in six weeks was the worse I have been since childhood, and I was feeling very out of my depth, so I was relieved that Chris was back for this appointment with me. Just under three weeks earlier there seemed to be some improvement in my seizure control. I also had questions for obstetrician about the baby and the impact falling on my stomach repeatedly would have.
One of the positives that come following that awful day was Faye had been nominated for a Young Epilepsy award. I think focusing on going to the awards kept Faye sane and gave her something to focus on. It was an amazing night and the stories were so inspirational and it was good to hear others experiences. I was so proud of her for being nominated and then short listed, and although I was disappointed for her that she didn’t win she will always be a winner in my eyes and my champion.
Epilepsy affects all
In keeping with the theme that epilepsy affects whole families and not just the person with epilepsy, and I think it is fair to say this trimester has taken its toll on Chris too. This is the first of a two part entry covering the second trimester, lining up with my entries as much as he could.
I sat down to watch this with Faye and it took us a while to go through it as she was taking notes the whole way through it. I was really pleased that epilepsy was getting some exposure. My first surprise is how much the local governments were failing to meet NICE guidelines, and the variations in care depending on where in the country you were.
My names Faye, mostly known for being a tea addict and keen runner and swimmer. I'm 32, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.