Waiting game
As I mentioned in my previous blog, epilepsy in pregnancy does matter, and so this is a much awaited appointment. I had mixed feelings about it. Firstly I felt defeated, worn down by the epilepsy and the break through in my seizures,it had been almost two years since I last had to see my neurologist.Mostly I was anxious for it to be here, I knew I would get some much needed answers. It was also my chance to take my husband along for him to ask any questions or to just put his mind at rest.
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So does this – my epilepsy - matter?
Ours wasn’t an unplanned pregnancy, but thanks to my very good epilepsy nurse, I had started taking 5mg of folic acid since December 2013. My nurse has been amazing, but I was shocked at how little information and support there is available for mums-to-be with epilepsy. I had millions of questions – but nowhere to turn for answers. I don’t know one other mum or mum-to-be with epilepsy. I also found that my epilepsy did matter. No sooner had I done the test when the morning sickness started and my epilepsy got worse. My GP (who is amazing) has given me some anti-sickness tablets. This is to prevent sickness and help me to keep my meds down, pretty important in controlling epilepsy. ![]() Us Let’s start with the simple stuff. I’m Faye, 28 years old and live in London with my husband (we have just celebrated our first wedding anniversary)and our puppy Patch. I work full time (shift work), love being active, running and socialising. I also have epilepsy – but does this matter? Let’s rewind a little I was diagnosed with epilepsy at the age of seven. I was prescribed sodium valproate and this controlled my seizures. At the age of 14 I was weaned off my meds. All was fine. |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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