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Waiting game
As I mentioned in my previous blog, epilepsy in pregnancy does matter, and so this is a much awaited appointment. I had mixed feelings about it. Firstly I felt defeated, worn down by the epilepsy and the break through in my seizures,it had been almost two years since I last had to see my neurologist.Mostly I was anxious for it to be here, I knew I would get some much needed answers. It was also my chance to take my husband along for him to ask any questions or to just put his mind at rest.
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So does this – my epilepsy - matter?
Ours wasn’t an unplanned pregnancy, but thanks to my very good epilepsy nurse, I had started taking 5mg of folic acid since December 2013. My nurse has been amazing, but I was shocked at how little information and support there is available for mums-to-be with epilepsy. I had millions of questions – but nowhere to turn for answers. I don’t know one other mum or mum-to-be with epilepsy. I also found that my epilepsy did matter. No sooner had I done the test when the morning sickness started and my epilepsy got worse. My GP (who is amazing) has given me some anti-sickness tablets. This is to prevent sickness and help me to keep my meds down, pretty important in controlling epilepsy.  Us
Let’s start with the simple stuff. I’m Faye, 28 years old and live in London with my husband (we have just celebrated our first wedding anniversary)and our puppy Patch. I work full time (shift work), love being active, running and socialising. I also have epilepsy – but does this matter? Let’s rewind a little I was diagnosed with epilepsy at the age of seven. I was prescribed sodium valproate and this controlled my seizures. At the age of 14 I was weaned off my meds. All was fine. |
AuthorMy names Faye, mostly known for being a tea addict, swimmer and now Paralegal and part time student. I'm 36, married and I had my 1st (and only) child in June 2015. Oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy and the voice I have become for those with epilepsy. Archives
December 2022
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