Let’s start with the simple stuff. I’m Faye, 28 years old and live in London with my husband (we have just celebrated our first wedding anniversary)and our puppy Patch.
I work full time (shift work), love being active, running and socialising. I also have epilepsy – but does this matter?
Let’s rewind a little
I was diagnosed with epilepsy at the age of seven. I was prescribed sodium valproate and this controlled my seizures. At the age of 14 I was weaned off my meds. All was fine.
Then at 21 – my seizures started again. I started taking sodium valproate until my nurse changed my medication and I began to take lamotrigine. This was possibly my nurse’s wisest move. While SV was a good med for controlling my seizures, it’s not the safest epilepsy med to expose an unborn baby to. Does this matter when children aren’t on your mind? Well around half of pregnancies are thought to be unplanned so……
My epilepsy tends to consists of auras, absences and generally feeling fuzzy headed, with the occasional tonic-clonic seizure for good measure. I finally got some seizure control about 18 months ago, and all was smooth until the 25 October 2014
Two blue lines
So in October I suddenly started having auras. For me, auras are like having tinted vision – everything seems a little bit far away, and very spaced out. I was really concerned. I know that epilepsy does as it pleases - but it had been so well controlled for so long. Hell I’d even run two marathons.
So on the 25 October I went to the toilet with a magic stick. A ha! I found out why – we were having a baby! That moment when you realise that the test is positive, is one that you can never fully describe. I thought that I was going to pass out. I didn’t quite believe it!
However I had to do one thing. One thing that I can say is my all-time favourite thing that I have ever done. I told my husband that he was going to be a dad, a moment that will stay with me forever.
My names Faye, mostly known for being a tea addict and keen runner. I'm 31, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.