So does this – my epilepsy - matter?
Ours wasn’t an unplanned pregnancy, but thanks to my very good epilepsy nurse, I had started taking 5mg of folic acid since December 2013. My nurse has been amazing, but I was shocked at how little information and support there is available for mums-to-be with epilepsy. I had millions of questions – but nowhere to turn for answers. I don’t know one other mum or mum-to-be with epilepsy.
I also found that my epilepsy did matter. No sooner had I done the test when the morning sickness started and my epilepsy got worse. My GP (who is amazing) has given me some anti-sickness tablets. This is to prevent sickness and help me to keep my meds down, pretty important in controlling epilepsy.
The lamotrigine I take has also been affected. During pregnancy the hormone oestrogen increases and this increase can lead to the level of lamotrigine in one’s body to drop. In my case – this has lead to my seizures breaking through again.
So I sit here, 10 weeks and five days pregnant. Our parents, siblings, closest friends and my line manager all know my news. For me, telling my line manager was a practical move, due to my epilepsy and my sickness. Our families and close friends know because we just couldn’t keep it in. I found it hard not to tell anyone – but the longer I stay mum – the less I want to tell people. I like us being in our little bubble.
Of course people at work have become suspicious, but I think that I’ve managed to throw them off the scent. But with Christmas fast approaching…… I’m not sure how long this will last.
But how am I really?
Giddy and excited but – if I’m honest I am finding it hard to adjust to life with my seizures again.
My meds have been increased after a phone call to my neurologist and I have my first obstetrics appointment with my neurology team in two days. It can’t come quick enough!
My amazing nurse has left to work at another hospital and I’m apprehensive about who will fill her place and when. I need help and guidance and it would be great to talk to a nurse I know and trust. Once again, I’ve been back to the internet and the forums, looking for information, support and just about anything that will help me.
And that’s why I’m doing this. If I can connect and help one other mum – I’ll be happy. Also someone might have an answer to my questions. I also think that writing my blog, sharing my pregnancy with other mums through this blog and Epilepsy Action will help me.
My names Faye, mostly known for being a tea addict and keen runner. I'm 31, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.