BLOG POST 50!!!!!!!!!!!!!!
My 50th blog post!!! I actually cannot believe I am writing that, how am I at 50 already? I obviously talk too much! I was wracking my brains this morning for a topic to cover to mark this event and someone suggested this: How has the blog helped me? So today that is what I will tell you all.
I wrote this post a few weeks ago but due to being very busy then starting a new job and then a sickness bug in the Waddams household it has meant it hasn’t been published. As we speak myself and Chris are only just starting to feel better from the bug Noah had in the week. For me it has meant seizures and activity which have been a nightmare, Saturday morning we were in no state to look after Noah so Ma Chambers came and whisked him off for a sleepover (thanks Mum!) SO in the delay some more has been added to this since.
When the blog originally started it was a way of just putting it out there and hoping that I found someone else in the same position as me, or anyone I could talk to really, I was feeling like a fish out of water. Yes I had supportive friends and family but what I needed was someone who had been there or was going through it. Little did I know at the time how quickly and just how many people I was going to find.
Benefits to me
Firstly the blog gave me a place to vent when things weren’t going so well, it was so therapeutic to write it all on paper and let it out, some days it saved my sanity. When I was ill it gave me a focus, the days I had to spend just lying on the sofa, other than watching The Bill it was something to do. (EDIT: Since originally writing this I have met PC Nick Klein in my local Starbucks!)
Yes there were days that I couldn’t find the strength to write but on the better days it was my saviour. It wasn’t just the blogging, there were the emails I got and I made sure I had time to reply to them all in great length, if someone had taken the time to write to me they deserved a good response and support, even if it did take a while!
More recently it has given me memories, so much of my pregnancy is a blur to me. My sister in law had my blog made into a book and I am currently reading it, I have spent a lot of time saying to Chris did that really happen; I just can’t remember a lot of stuff. In turn it also gives Noah a record of how he came into this world and just how much he was loved and wanted before he arrived. The blog has helped me by giving me a network of “mummy friends” (I hate that term!) people who are in the same position, who understand how frustrating med changes are, the effects of sleep deprivation, the feelings of helplessness. I started this pregnancy feeling so alone, but with Noah approaching one year old it is far from the case.
Since starting the blog I have developed really good relationships with the epilepsy charities (big thank you to Young Epilepsy and Epilepsy Action) they have been so supportive but also given me answers when I needed them and had nowhere else to turn, they have also allowed me to help people. I have had people approach me before they have even conceived looking for answers, support or help. I have been contacted by people who are newly pregnant and they haven’t even told their families but they trust me enough to come to me and ask me for help. That makes me unbelievably proud, I can’t put into words what that means or how humbled I am by it. I have been in the very fortunate position to be nominated for several awards and to win one, I didn’t even know these awards existed before I started blogging, but again the sense of pride is second to none, it has also given me confidence and belief in what I do. I have met some remarkable women who are making damn sure women with epilepsy know the risks of Anti-Epileptic Drugs in pregnancy, and through these ladies I have learned so much, which puts me in an entirely new position if we were to ever have another baby. The most recent piece of news (as in only today) Buzzfeed have contacted me as they are working on an article about epilepsy and they want me to feature in their pregnancy and epilepsy bit – I have to say I did a little happy dance, in the blogging world BuzzFeed is a big thing (or so I gather from the blogging forums I am in!) To put Epilepsy out there to such a wide audience is amazing, I cannot tell you the satisfaction I get from all of this to know that material is now existing that WILL be of some use to someone. Also I have to say with giving up work originally the blog gave me a sense of purpose and worth as well as being ‘just’ a Mum and wife, it allowed me the time to make choices that were best for us.
Recently someone made comments to me that they believed I earned from the blog, let me put that straight, I earn nothing from my blog, I do everything I do in my own time, I spend hours replying to emails because I WANT to not because I earn anything from it. This was never about money, this was about how I could help people.
One of the things that have helped me most is that I have been taken seriously, that others are starting to see the huge gap in the care and information for women with epilepsy in pregnancy. I have been involved in patient consultations and more recently I have been asked by the Royal College of Obstetricians and Gynaecologists to help put together information for women with epilepsy. To think I thought no one would read my blog, to know I am helping people has helped me; Women in the future will at least have a starting point.
So everyone one of you have helped me, every single one of you that have emailed, given feedback or trusted me with your experiences and lives, I thank you all and you will never know how invaluable it all was to me when we were going through a rough patch, or how on the good days it all made me smile that little bit more.
In exciting news we are getting ready to celebrate Noahs first birthday this weekend before he turns one on the 13th! Where has this time gone!
My names Faye, mostly known for being a tea addict and keen runner. I'm 31, married and I had my 1st child in June 2015, oh and I also happen to have epilepsy. This is my story of Pregnancy, Motherhood & Epilepsy.